New Webinar

Sickle Cell Disease: Myths and Realities
Wednesday August 6, 2014 12:00pm-1:00pm
Join us to learn about the physical, psychological and social aspects of Sickle Cell Disease as well as treatments and outcomes. Learn how to advocate as a caregiver, a patient with sickle cell disease or as a provider so that emergency department visits are more "successful." 
Marsha Treadwell, PhD, Director, Northern California, Network of Care for Sickle Cell Disease
Wanda Williams, Chairperson, Sickle Cell Community Advisory Council
Space is limited.
Reserve your Webinar seat now at: 


Project Leadership opportunity in Oakland this fall!

We are looking for families who want to be heard. Apply now for Project Leadership!

FVCA Project Leadership will prepare families with the skills and tools needed to partner and engage in all levels of public advocacy on behalf of children with special health care needs. The Project Leadership curriculum introduces parents/caregivers to the nuts and bolts of advocacy in a seven session (4 hours each) training series. FVCA Project Leadership training is funded through a grant from the Lucile Packard Foundation for Children’s Health.

Go to the projects page for more information and how to apply


Assembly Budget Subcommittee Hearing Video

Watch this video of our very own FVCA Project Leadership graduates and Eileen Crumm and Wendy Longwell, FVCA Council members, give testimony at the Capitol on February 24th at the Assembly Budget Subcommittee Hearing.  They spoke passionately about their concerns for the intended changes to the California Children’s Services program.


School health services: 1.2 million CA students have no access to a School Nurse

A recent study of health services in California schools, funded by the Lucile Packard Foundation for Children's Health, and headed by Dian Baker, pictured above, a pediatric nurse practitioner and associate professor of nursing at CSU-Sacramento, was presented in March at the California School Nurses Association in Sacramento.
Health services for California students with special health care needs vary greatly by school district, are provided by a variety of school staff, operate under a confusing patchwork of regulations, and are often underfunded, according to a new study. Researchers from California State University-Sacramento’s School of Nursing analyzed 2011-2012 state education data, interviewed school education experts, and conducted a large-scale survey of certified school nurses who are members of the California School Nurses Association.
To read 3 interesting fact sheets on the findings of their research please click here

Thank You for Attending the 2014 Health Summit!

Thank you to all who attended the Family Voices of California 12th annual Health Summit on February 24-25 in Sacramento!
It was a wonderful event that brings together people who make health care policies, people who provide health care services, and families who rely on those services to meet the significant health care needs of their children. 
UPDATE 4/3/2014
Take a look at the Health Summit Highlights for photos, stories, and more of the Summit and Legislative Day.