Founded in 1997, Family Voices of California (FVCA) is a statewide collaborative of locally-based parent run centers working to ensure quality health care for children and youth with special health care needs.
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FVCA Links
Recent
- New Webinars 5/22 and 5/29
- New FDA Patient Network Website
- Settlement of IHSS Lawsuit will Prevent Devastating Cuts to Home Care Services
- April 2013 Webinar Recording: The Affordable Care Act and Exchange – What are the Specifics?
- Webinars for Autism Awareness Month
- 11th Annual Health Summit is another Success!
- November 2012 Webinar Recording: Changes to MediCal and Healthy Families
- October 2012 Webinar Recording
- As National Work & Family Month Begins, National Family Voices Celebrates the Work of Special Parent Heroes
- Bright Futures Family Pocket Guide, 2nd Edition now available!
New Webinars 5/22 and 5/29
May 15, 2013In Home Support Services (IHSS)
Wednesday May 22, 2013, 12:00pm-1:00pm
This webinar will cover a brief overview of IHSS, developments in the Oster v. Lightbourne case, recent changes and developments in the IHSS program, and where families may go for help. Presenter: Maria Fernanda Iriarte, Managing Attorney, Disability Rights California
Reserve your Webinar seat now at:
https://www2.gotomeeting.com/register/335157978
https://www2.gotomeeting.com/register/335157978
Regional Centers and Insurance Companies –Who pays for what services
Wednesday May 29, 2013, 12:00pm-1:00pm
This webinar will review California’s Autism Insurance Mandate – Who is the payer of first resort to cover necessary treatments for children with autism or PDD? Presenters: Amy Westling, Senior Policy Analyst at Association Regional Center Agencies (ARCA), Katie Hornberger, Director, Office of Clients' Rights Advocacy, Disability Rights California, and Janice Milligan, Director of Health Net of California.
Reserve your Webinar seat now at:
https://www2.gotomeeting.com/register/892168138
https://www2.gotomeeting.com/register/892168138
New FDA Patient Network Website
April 15, 2013New FDA Patient Network Website:
The site gives patients and advocates a bigger voice in medical product regulation, which includes drugs, devices, and biologics. This site will:
- Educate the community about FDA regulatory and policy issues, the medical product development lifecycle, mechanisms in place to provide stakeholder input, Federal Register notices, and public meetings.
- Encourage patients and advocates to communicate with FDA.
- Show how patient advocates can serve on FDA working groups, become Patient Representatives, speak at meetings and more. This is one way the FDA hopes to expand inclusion of the patient perspective in FDA initiatives, problem-solving, decision-making, and medical product development, review and approval.
- The new Web site provides a wealth of patient-friendly information on drug and device development and approval, clinical trials, latest treatment options, important safety information and much more. Useful interactive tools help visitors of the site find “Approved Drugs at FDA,” and “Search for a Clinical Trial.”
- This Web site also is home to the Patient Representative Program, where members of the public can apply to sit on official FDA Advisory Committees and act as consultants during the drug and device review processes.
Settlement of IHSS Lawsuit will Prevent Devastating Cuts to Home Care Services
April 10, 2013Seniors and people with disabilities will continue to receive IHSS without interruption. This Settlement creates a pathway for full restoration of all IHSS cuts. Lawyers representing IHSS consumers, unions and the State of California have reached a settlement that will prevent the implementation of devastating cuts to In-Home Supportive Services (IHSS). The settlement resolves a federal lawsuit, and also resolves a second lawsuit challenging wage reductions for IHSS providers. Learn More:
www.disabilityrightsca.org/news/2013_newsaboutus/pressrelease_20130319.htm
IHSS Settlement Flyer - English [pdf]
IHSS Settlement Flyer - Spanish [pdf]
April 2013 Webinar Recording: The Affordable Care Act and Exchange – What are the Specifics?
April 4, 2013On April 3rd, 2013, Lisa Chan-Sawin presented the Affordable Care Act and Exchange Webinar. Lisa spoke of the specifics of the ACA which included an overview , the timeline of provisions impacting Children Health Benefit Exchanges, California’s implementation of the ACA, pediatric coverage and the uncertain future of the ACA.
Go to our archives page to download a video of the presentation.
Webinars for Autism Awareness Month
April 2, 2013In celebration of Autism Awareness Month, HRSA/MCHB will be hosting the webinars (April 4th, 8th, and 24th). The webinars feature the work of MCH CAAI State, Training and Research Grantees.
Mark your calendars for the events! You can register for the webinars using the links below.
- Webinar: Autism Spectrum Disorders: Family Support and Involvement
When: Thurs, April 4, 12:30-1:30 EDT
Register - Webinar: Expediting Detection of Autism Risk and Intervention Access
When: Mon, April 8, 1-2 pm EDT
Register - Webinar: Screening, Early Diagnosis, and Early Intervention
When: Wed, April 24, 2-3 pm EDT
Register