Pip Marks: Project Director
Pip attended her first parent support group meeting at Support for Families 34 years ago when her oldest son was born with spina bifida and hydrocephalus. Prior to joining FVCA in March 2013, she was the Director of Education and Support for the Hydrocephalus Association for 18 years where she worked extensively with families and professionals affected by hydrocephalus. Pip’s son remains her guiding light in her work as she focuses on improving the lives of children and youth with special health care needs. A native New Zealander, she has lived in the Bay Area for over 40 years.
Elaine Linn: Project Leadership Manager
Elaine has spent nearly 25 years uniting national, statewide, and local nonprofit, community, public, and corporate partners in public health policy efforts. In her work helping nonprofit organizations achieve their advocacy goals, Elaine has collaborated with health care providers, academic institutions, patient advocacy organizations, patients and consumers, hospitals, and pharmaceutical manufacturers, in the areas of pharmacy, psychiatry, ophthalmology, and genetics, as well as diabetes, sepsis, social work, disability, and women’s and children’s health to engage communities, promote awareness, reduce stigma, and increase access to care.
Elaine is a public affairs consultant and the parent of two sons, including one who has Down syndrome and multiple related health conditions. She has worked with the California Children’s Hospital Association, conducting grassroots advocacy outreach and education related to the California Children’s Services program redesign and the ongoing federal health reform proposal. She serves as a member of the State Council on Developmental Disabilities Sacramento Regional Area Council, and as a member of the California and National Down Syndrome Advocacy Coalitions. Elaine previously served as Chair of the American Diabetes Association Sacramento Mission Delivery Committee, and as a member of the UC Davis Health System Community Advisory Board. Elaine also co-founded the Down Syndrome Information Alliance in Sacramento and served on its Board of Directors for several years. She lives in Folsom with her husband and two sons.
Ali Barclay: Family Engagement Manager
Ali transitioned to the Family Engagement Manager position from her previous role as the Whole Child Model Outreach & Education Manager. Before coming to Family Voices, she worked as the Information & Resources Director at Support for Families of Children with Disabilities in San Francisco, ensuring families had adequate and accessible information to help them make informed decisions about the health and well-being of their children.
Ali has an adult sibling with cerebral palsy, and her experience navigating the world of physical, mental, and social health as a family of physical and neurological diversity has led her to help other families access information, resources, relationships with other families, and opportunities for input and collaboration.
Jacqui Knudsen, Outreach & Education Manager, Whole Child Model Project
Before coming to Family Voices, Jacqui worked as Community Outreach Coordinator at Regional Center of Orange County and Supervisor at Comfort Connection Family Resource Center. She has an adult son who was born with Down syndrome and she is on the Advisory Board for Down Syndrome Association of Orange County. It is Jacqui’s goal to help families and professionals navigate systems of care as smoothly as possible. She lives with her family in Orange County and likes to hike in her spare time.
Want to join our team?
Check the Support for Families of Children with Disabilities Website for job openings.