Pip Marks: Project Director
Pip attended her first parent support group meeting at Support for Families 31 years ago when her oldest son was born with spina bifida and hydrocephalus. Prior to joining FVCA in March 2013, she was the Director of Education and Support for the Hydrocephalus Association for 18 years where she worked extensively with families and professionals affected by hydrocephalus. Pip’s son remains her guiding light in her work as she focuses on improving the lives of children and youth with special health care needs. A native New Zealander, she has lived in the Bay Area for over 38 years.
Elaine Linn: Training Manager
Elaine has spent nearly 25 years uniting national, statewide, and local nonprofit, community, public, and corporate partners in public health policy efforts. In her work helping nonprofit organizations achieve their advocacy goals, Elaine has collaborated with health care providers, academic institutions, patient advocacy organizations, patients and consumers, hospitals, and pharmaceutical manufacturers, in the areas of pharmacy, psychiatry, ophthalmology, and genetics, as well as diabetes, sepsis, social work, disability, and women’s and children’s health to engage communities, promote awareness, reduce stigma, and increase access to care.
Elaine is a public affairs consultant and the parent of two sons, including one who has Down syndrome and multiple related health conditions. She has worked with the California Children’s Hospital Association, conducting grassroots advocacy outreach and education related to the California Children’s Services program redesign and the ongoing federal health reform proposal. She serves as a member of the State Council on Developmental Disabilities Sacramento Regional Area Council, and as a member of the California and National Down Syndrome Advocacy Coalitions. Elaine previously served as Chair of the American Diabetes Association Sacramento Mission Delivery Committee, and as a member of the UC Davis Health System Community Advisory Board. Elaine also co-founded the Down Syndrome Information Alliance in Sacramento and served on its Board of Directors for several years. She lives in Folsom with her husband and two sons.
Ali Barclay: Outreach Education Manager, Whole Child Model Project
Before coming to Family Voices, Ali worked as the Information & Resources Director at Support for Families ensuring families had adequate and accessible information to help them make informed decisions about the health and well-being of their children. Prior to her work at Support for Families, she spent several years in the East Bay community matching homeless and uninsured individuals with low-cost and inclusive health care services.
Ali grew up with three siblings, one with Cerebral Palsy, and witnessed firsthand how her parents’ understanding of how to navigate California Children’s Services was imperative in the fulfilling childhood all of her siblings shared. It was this experience that led her to pursue work that demystifies the systems that often require time and resources to access that many do not have.
Want to join our team?
Check the Support for Families of Children with Disabilities Website for job openings.