This newsletter was sent May. If you’d like to receive our next bi-weekly digest full of a curated collection of resources, workshops, policy highlights, and action items that affect children and youth with special health care needs, please sign up here.
Please join us for these free Webinars hosted by Family Voices of California.
Educational Advocacy After Brain Surgery Part 1
May 30, 2018 12:00 PM PDT
Educational Advocacy After Brain Surgery Part 2
June 6, 2018 12:00 PM PDT
These presentations are intended to provide information to help parents and professionals understand the impact on a child’s brain after injury or surgery and how to advocate for special education programs and services for those children and youth. Training topics will include: function of each brain lobe/region, impact of brain injury on functional outcomes, understanding the Individual Education Program (IEP) process; basic special education rights; referral procedures for special education assessment; parent rights in the IEP process; and effective advocacy techniques.
Webinar Presenter: Audrey Vernick, Director of Educational Advocacy and Training at The Brain Recovery Project: Pediatric Epilepsy Surgery Foundation.
New Lucile Packard Foundation for Children’s Health report regarding children in California with special health care needs enduring delays in securing the much needed medical equipment and supplies. This report examines the administrative barriers that are behind these chronic delays, and offers recommendations for what can be done to address them.
Read the full report and a fact sheet outlining its recommendations.
2018 HEALTH SUMMIT
Pediatric Cancer Bill Cleared by Congress
On May 22, the House passed S. 292, the Childhood Cancer STAR Act, by a voice vote. The bill had already passed the Senate by unanimous consent. The legislation is intended to advance research on, surveillance of, and treatments for pediatric cancer. The bill now goes to the president for his signature. See this press release from the House Committee on Energy & Commerce.
PREPARE TO VOTE!
POLICY—CONVENE AND LEARN
TRAINING/INFORMATION – Meetings, Conferences, Webinars
Proven Strategies for positive behavior support,including real-life video examples: