10^th Annual

                 Family Voices of California is in the process of planning

                            Registration will open soon....stay tuned.

10th Annual
Family Voices of California
Health Summit and Legislative Day
Sacramento
                            MARCH 13th and 14th, 2012
 
Identifying key California budget issues and
how they affect children with special health care needs
This is your opportunity to learn what is happening
at the Federal, State and local levels
 
Take an active role
 
MAKE SURE YOUR VOICE IS HEARD IN SACRAMENTO
 
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Funded by a grant from U.S. Dept of Health and Human Services,
Health Resources Services Administration, Maternal Child Health Bureau
 
Transportation and Lodging Scholarships and a limited number of stipends will be available
 
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Family Voices of California is in the process of planning
Registration will open in early February - stay tuned..........
 
For more information contact: Debbie Brennan at dbrennan@familyvoicesofca.org

 
National Center for Cultural Competence - Two-Part Webinar on Cultural and Linguistic CompetencePresenters:    Tawara D. Goode & Wendy A. Jones
Part I. Cultural Competence:  What Does it Mean for Family Resource Centers?
Child- and youth-serving systems and organizations continue to struggle with responding effectively to the interests, preferences, and needs of this nation's diverse populations and communities. Cultural competence and linguistic competence are viewed as an essential approaches for addressing diversity, and in reducing disparities by improving access, utilization, and service delivery, and ultimately the outcomes and well-being of children, families, and the communities in which they live. The first in a series of two Webinars will a) explore the importance of cultural competence,  b) describe a conceptual framework for advancing cultural competence at both the organizational and individuals levels, and 3) delineate the implications for cultural competence for family resource centers and personnel who provide supports to families of children and youth with disabilities, behavioral health, and special health care needs 
Space is limited.Reserve your Webinar seat now at:https://www2.gotomeeting.com/register/347418450

 ***NEW*** Archived Webinar

 ***NEW*** Archived Webinar

This webinar will highlight Medi-Cal basics.  What services does Medi-Cal provide in California? This webinar will provide information on Medi-Cal eligibility, services provided by Medi-Cal and Institutional Deeming.  The webinar will include an opportunity to ask questions.

**NEW*** Archived Webinar

Children With Pre-Existing Conditions: Connecting Kids with Coverage in California

This webinar will highlight health insurance issues and options for children with pre-existing health conditions in California. Using state and county data, outreach resources from the 100% Campaign, and organizing efforts to improve the lives of children, this webinar will the describe: (1) the existing need for and barriers to coverage, (2) new opportunities to connect uninsured kids with pre-existing health conditions to coverage, and (3) ways to further inform policymakers about the importance of children’s coverage. The webinar will culminate in an interactive discussion about how to improve coverage for children with pre-existing conditions and best tailor outreach efforts to have the greatest impact on this population of children.

**NEW*** Archived Webinar

Developing and Integrating Patient and Advisory Councils

Featured presenters:

• Libby Hoy, Founder, Patient and Family Center Care Partners (www.pfccpartners.com)

Covers how patients and families can work together with healthcare organizations to improve care for children and youth with special health care needs. This webinar is for both families and health care organizations—whether you are a family member of a hospital who wants to get more involved and provide input into patient care or a healthcare organization who would like to engage families. Learn how to start, sustain and provide training to Advisory Councils or find out if your health care organization already has one.

HANDOUTS:

To view the slides for the presentation, click here.

• Example 1
• Example 2

To view a video of the presentation, click here

Please visit the Patient and Family Center Care Partners at: www.pfccpartners.com to get information on the JUNE 24th upcoming conference and other resources. 

**NEW*** Archived Webinar

THE IMPORTANCE AND BENEFIT OF PARTICIPATING IN AUTISM RESEARCH: Perspectives of a Leading Scientist and Parents of Children with Autism

Featured presenters:

• Lisa Croen, PhD, Director Autism Research Program and Senior Research Scientist, Division of Research, Kaiser Permanente
• Vanessa Wallace, Mother of 4 children with an autism spectrum disorder; Member Autism Research Program Community Advisory Board

This presentation was in honor of Autism Awareness Month and featured Dr. Lisa Croen, Senior Research Scientist and Director of the Autism Research Program at Kaiser Permanente Division of Research and parents of children with autism spectrum disorders (ASD).  It presents the state of autism research, two high profile, national studies, SEED and EARLI, and the importance of families participating in autism research.  Topics covered include: how researchers are seeking to discover the genetic and environmental risk factors for ASD and how families can contribute to science by participating in one of these studies.

HANDOUTS:

• Overview of Autism Research Program
  
• Flyers for Autism Research Program (in English and Spanish)
• Autism Recurrence Fact Sheet
• Thimerosal Fact Sheet

To view the slides for the presentation, click here.

To videw a video of the presentation, click here

Please visit the Autism Research Program website at: www.autismresearch.kaiser.org to view videos and and new materials including the 2nd Edition of the Autism Parent Handbook. 

Coverage options for children with pre-existing conditions (a fact sheet)

A collaborative effort of Family Voices of California, 100% Campaign, Children Now, Family Resource Centers Network of California and Children’s Specialty Care Coalition, this fact sheet in English, Spanish and Chinese helps families and providers alike understand and access insurance for children with pre-existing conditions.

• English 
• Spanish
• Chinese.

Thank you to all our partners who made this Summit an overwhelming success. A report with photos coming soon.

Featured speakers

• David Maxwell-Jolly, Undersecretary of California Health and Human Services
• Jean Ross, California Budget Project
• Edwin Park, Center for Budget and Policy Priorities
• Rocio de Mateo Smith, Area Board 5
• Laurie Soman, Packard Children’s Hospital
• Marilyn Holle, Disability Rights California
• Kathryn Smith, USC University Center for Excellence in Developmental Disabilities
  
• Representatives of Health Plans serving children and youth with special health care needs: HealthNet, CalOptima, San Mateo Health Plan and Alameda Alliance
  
• David Alexander, Lucile Packard Foundation for Children’s Health
• Erin Aaberg Givans/Tim Shannon, Children’s Specialty Care Coalition
• Assemblymember Tom Ammiano
  
• Assemblymember Dr. Richard Pan

Materials

• FVCA 2011-12 Budget Analysis: how the California budget impacts children and youth with special health care needs
• 1115 Waiver: What is it? A fact sheet from FVCA.
• Others coming soon

Presentations

• About Us: FVCA 2011 Summit Slides

This slideshow provides background on the annual Health Summit & Legislative Day, Family Voices of California and profiles families who attended in 2010.

• What's Going on in the Nation" by Edwin Park, Center for Budget and Policy Priorities

This presentation provides an overview of federal policy and its impact on children and youth with special health care needs in California.

• What Does This Year's Budget Crisis Mean for Children and Youth with Special Health Care Needs?" by Jean Ross, California Budget Project

This presentation provides an overview of the California budget, including potential impacts on children and youth with special health care needs.

• "What Specific Changes have come as a result of the 1115 waiver and proposed CCS pilots" by Laurie Soman, Lucile Packard Children's Hospital

This presentation explains this MediCaid waiver, provides up-to-date information on the process and expected impacts.

• "The Outlook for Systems of Care in California" with Laurie Soman, Kathryn Smith (USC UCEDD), Marilyn Holle (Disability Rights California), Robert Dimand (California Children's Services), Ana Clark (HealthNet), Gregory Buchert (CalOptima), Leila Saadat (Alameda Alliance) and Maya Altman (Health Plan of San Mateo)

This panel addressed MediCal changes, access to care, and profiled four health plans that serve children and youth with special health care needs followed by a very energetic audience Q&A.