Internet Resources

• Parent-to-Parent Information
  and Support Sites
• Partnerships
• General Disability Sites
• Legal Legislative Advocacy Sites
• Health
• Drug Information
• Mental & Behavioral Health
• Military Families

• Educational
• Disability Specific
• Government Sites
• Federal
• State
• Products
• Spanish Language
• Transition
• Research & Data

Exceptional Family Resource Center
http://www.efrconline.org

Family Education Network
http://www.familyeducation.com/

Federation for Children with Special Needs
http://www.fcsn.org/

Matrix Parent Network and Resource Center
http://www.matrixparents.org/

National Center for Fathering
http://www.fathers.com/

National Fathers Network
http://www.fathersnetwork.org/

National Information Center for Children with Disabilities (NICHCY) Database of resources
http://www.nichcy.org/

PACER Center
A parent training and information center which offers links to a variety of disability-related web sites.
http://www.pacer.org/

Parents Helping Parents
http://www.php.com/

Positive Parenting
http://positiveparenting.com/

Technical Assistance for Parent Centers
http://www.taalliance.org/

Annual State-Wide Health Summit
familyvoicesofca.org/conference

Family Voices (National)
www.familyvoices.org

Children's Regional Integrated Service Systems (CRISS)
criss-ca.org

California's Children with Special Health Care Needs (CaCSHCN-CA)
cshcn-ca.org

Association for Persons with Severe Handicaps
http://www.tash.org/

Beach Center
http://www.beachcenter.org/

Council for Exceptional Children (CEC)
http://www.cec.sped.org/

Date Resource for Child and Adolescent Health
http://cshcndata.org/
desktopdefault.aspx The survey provides information about CYSHCN in all 50 states and the District of Columbia.

Disability Resources
http://www.disabilityresources.org/

Early Childhood Technical Assistance Center (NEC*TAC)
http://www.nectac.org/

Exceptional Parent Magazine
Exceptional Parent Magazine is an ongoing resource for families with children with any disability.
http://www.eparent.com/

Family Village
A global community that integrates information, resources, and communication opportunities on the Internet for persons with disabilities, their families and those that provide services and support.
http://www.familyvillage.wisc.edu/

Internet Resources for Special Children (IRSC)

Zero to Three
http://www.zerotothree.org/

Axis (Disability advocacy)
http://www.normemma.com/

Bazelon Center for Mental Health Law
http://www.bazelon.org/

Children's Defense Fund
http://www.childrensdefense.org/

EDLAW Home Page
http://www.edlaw.org/

Families USA
http://www.familiesusa.org/

Family Voices
A national grassroots network of families and friends speaking on behalf of children with special health care needs.
http://familyvoices.org/

Institute for Child Health Policy
http://ichp.ufl.edu/about-us/

PAI (Protection and Advocacy, Inc.)
An organization that works in partnership with people with disabilities to protect, advocate for and advance their human, legal and civil rights.
http://www.pai-ca.org/

Reed Martin Special Education Law
http://www.reedmartin.com/

Special Ed Advocate (Peter/Pam Wright website)
http://www.wrightslaw.com

Alphabetic List of Specific Diseases/Disorders
http://www.mic.ki.se/Diseases/
alphalist.html

American Academy of Pediatrics
http://www.aap.org/

American Medical Association
http://www.ama-assn.org/

Center for Disease Control
http://www.cdc.gov/

CSMC Neonatology
http://www.neonatology.org/

Healthfinder
http://www.healthfinder.gov/

Infotrieve Online
http://www.infotrieve.com/

Kids' Health
http://www.kidshealth.org/

Maternal and Child Health Policy Research Center -- Publications Page
http://www.mchpolicy.org/publications/

MD Choice
http://www.mdchoice.com/

Medicine Online
http://www.medicineonline.com

MedMatrix: Resource for web links to genetic diseases
http://medmatrix.org/

Multimedia Reference Library: A link to medical databases and bookstore.
http://www.medical-library.org/library.htm

National Institute of Neurological Disorders and Stroke/List of Disorders
http://www.ninds.nih.gov/

National Institutes of Health -- Health Info
http://health.nih.gov/

Medline (National Library of Medicine): National databases at the National Library of Medicine
http://www.ncbi.nlm.nih.gov
/entrez/query.fcgi

Medline Plus Health information for consumers. A service of the National Library of Medicine.
http://www.nlm.nih.gov/medlineplus/

National Maternal and Child Health Clearinghouse: The Clearinghouse is funded by the Health Resources and Services Administration (HRSA)
http://www.ask.hrsa.gov/

National Organization for Rare Diseases (NORD): NORD maintains a confidential database of rare disorders.
http://www.rarediseases.org/

The Simple Dollar Guide to Health Insurance
http://www.thesimpledollar.com/healthinsurance

Drug Infonet
http://www.druginfonet.com/

RxList - The Internet Drug Index
http://www.rxlist.com/

Internet Mental Health
http://www.mentalhealth.com/

Center for Mental Health Services
http://www.mentalhealth.org/

National Alliance for the Mentally Ill: Efforts of NAMI focus on supports to persons with serious brain disorders and to their families, advocacy, research and eduction.
http://www.nami.org/

BEHAVIOR SITES

Center for Effective Collaboration and Practice (Behavior)
http://cecp.air.org

DBP Main Frame (Development/Behavior Page of American Academy of Pediatrics) http://www.dbpeds.org/

CAPSES (California Association of Private Education/Services) [Listing of Non-Public Schools]
http://www.capses.com/

CEC ERIC Clearinghouse on Disabilities and Gifted Education
http://ericec.org/

CHADD (Children and Adults with Attention Deficit Disorder)
http://www.chadd.org/

Dyslexia: The Gift. Information and Resources
http://www.dyslexia.com/

Family & Advocates Partnership for Education (FAPE): A new project which aims to inform and educate families and advocates about the Individuals with Disabilities Education Act of 1997 and promising practices.
http://www.fape.org/

Heath Resource Center
http://www.heath.gwu.edu/

Inclusion Press Home Page
http://www.inclusion.com/

International Dyslexia Association
http://www.interdys.org/

Internet Special Education Resources (ISER)
http://www.iser.com/

LD Online
http://www.ldonline.org/

National Attention Deficit Disorder Association
http://www.add.org/

National Center for Learning Disabilities
http://www.ncld.org/

Non-Verbal Learning Disabilities
http://www.nldline.com/

Policymaker Partnership for Implementing IDEA: Summaries of various sections of the regulations for the Individuals with Disabilities Education Act (IDEA).
http://www.ideapolicy.org/

Schwab Foundation for Learning (formerly PERC)
http://www.schwablearning.org/

UAP Resource Directories on the Net (CA Developmental Disabilities Netlink)
http://www.npi.ucla.edu/

The Arc is a national voluntary organization committed to the welfare of all children and adults with mental retardation and their families.
http://www.thearc.org/

Autism Resources
http://www.autism-resources.com/

Autism Society of America
http://www.autism-society.org/

California Mental Health & Developmental Disabilities Center: http://npi.ucla.edu/mhdd/

Deaf WWW
http://www.deafwww.com/

Down Syndrome Home Page
http://www.nas.com/downsyn/

FEAT (Families for Early Autism Treatment)
http://www.feat.org/

National Down Syndrome Society
http://www.ndss.org/

Right Under My Nose - Book for Children w/Spina Bifida
http://www.childrenshospitalla.org/spinabifidabookeng/index.html

United Cerebral Palsy
http://www.ucpa.org/

Federal

The White House
http://www.whitehouse.gov/

The House of Representatives
http://www.house.gov/

The US Senate
http://www.senate.gov/

The Department of Health and Human Services
http://www.os.dhhs.gov/

Center for Medicare and Medicaid Services
http://cms.hhs.gov/medicaid/default.asp

Office of Special Education Programs (OSEP)
http://www.ed.gov/offices/OSERS/OSEP/

Social Security Administration (SSI)
http://www.ssa.gov/

US Dept of Education (IDEA site)
http://www.ed.gov/offices/OSERS/IDEA/

FDA Patient Network Website
www.patientnetwork.fda.gov

State

State of California
http://www.ca.gov/

CA Department of Developmental Services
http://www.dds.cahwnet.gov/

CA Dept of Education, Special Education Division
http://www.cde.ca.gov/sp/se/

CA Department of Health Services
http://www.dhcs.ca.gov/

Military Families

Military Home Front Information for families of children with special needs
http://www.militaryhomefront.dod.mil

ABLEDATA: A national database containing descriptive and source information on assistive devices.
http://www.abledata.com/

DREAMMS for Kids, Inc.
http://www.dreamms.org/

Family Village Mall contains an abundance of links to all kinds of products
http://www.familyvillage.wisc.edu/mall.htm

SNP WorldWide
http://www.specialneeds.com/

California Legislators: For information about finding California legislators in Spanish, check the following site: http://babelfish.altavista.com/babelfish/
trurl_pagecontent?lp=en_es
&trurl=http%3a%2f%2f
www.leginfo.ca.gov%2fyourleg.html

MCH (Maternal and Child Health) Spanish Language Resources on Health http://www.mchlibrary.info/
KnowledgePaths/kp_espanol.html

MedlinePlus Espanol
http://medlineplus.gov/spanish/

Mi Pediatra
http://www.mipediatra.com.mx/

NAMI (Alianza Nacional para los Enfermos Mentales)
http://www.nami.org/spanish/main.html

NICHCY (Centro Nacional para Niños y Jóvenes con Desabilidades)
http://www.nichcy.org/spanish.htm

NOAH: New York Online Access to Health
http://www.noah-health.org/

Adolescent Health Transition Project
http://depts.washington.edu/healthtr/

Job Accomodation Network (JAN)
http://www.jan.wvu.edu/

National Center on Secondary Education and Transition (NCSET)
http://www.ncset.org/

Warmline Family Resource Center, “Moving On: Transition to Adult Services Workbook for Parents” (pdf)
http://www.warmlinefrc.org/

National Collaborative on Workforce and Disability -- NCWD For Youth
http://www.ncwd-youth.info/

ThinkCollege.net
http://www.thinkcollege.net/
Information on post-secondary education for students with intellectual disabilities.

Transition Link
http://www.transitionlink.com/

HRSA's Health IT Toolbox for Children. For a brief description

http://www.hrsa.gov/healthit/