Project Leadership

Project Leadership is a parent advocacy training whose overall goal is to increase the number of family members of children with special health care needs who are prepared and supported to become advocates for health care policy and service improvements. The Project Leadership curriculum introduces parents and caregivers to the nuts and bolts of advocacy in a seven-session training series. The program is funded through a grant from the Lucile Packard Foundation for Children’s Health.

Project Leadership Training Manual

FVCA grants permission for the printing and implementation of the Project Leadership curriculum as long as FVCA is given credit. This curriculum is intended for use as a seven-session training series, or chapters can be used for individual training workshops. If you are using an individual chapter, please present chapter 0 prior to beginning the chapter session.

Project Leadership Manual Printing Instructions

Introduction: What Is Project Leadership? Acknowledgements, Council Members, Notes for Facilitator, Table of Contents

Chapter 0: Pre-Training

Chapter 1: Knowing the Past to Change the Future: History and Purpose of Advocacy

Chapter 2: Rules of the Road: Systems, Laws, and Entitlements

Chapter 3: Becoming a Mover and Shaker: Working with Decision-Makers for Change

Chapter 4: Playing Well with Others: Enhancing Communication

Chapter 5: Telling Your Story: Developing and Presenting Stories to Others

Chapter 6: Ways You Can Serve: Participating on Decision Making Bodies

Chapter 7: Solidifying Partnerships: Connecting with Local Change Makers

Appendix

Project Leadership: Association Of Maternal Child Health Program’s Innovation Station

AMCHP‘s Innovation Station is a searchable database of emerging and promising best practices in maternal and child health. To view the Project Leadership section, click here.

Project Leadership: Effecting Change, One Parent at a Time

Families of children and youth with special health care needs have had significant real-world experiences that could help make health care policies and administration more family-centered and culturally competent. However, many lack the training and experience to make their voices heard. FVCA’s Project Leadership program was designed to increase the capacity of families to partner in the development and oversight of services, systems, and programs upon which they and their children depend. Project Leadership features a comprehensive training curriculum, paired with mentoring and support, that prepares families to build partnerships with professionals and engage in public policy advocacy on behalf of children and youth with special health care needs. An independent evaluation found that program graduates from diverse backgrounds showed significant improvement in leadership skills and more confidence in their ability to advocate. In the project’s first two years, 79 parents completed the training and began actively participating on a variety of committees and planning bodies. In addition, they gave testimony at state and local hearings and were covered by the media.

Read the report: Project Leadership: Effecting Change, One Parent at at Time

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