January 14, 2011

Upcoming Trainings

2012 TBA

 

Archived Brown Bag Lunch Trainings

  • **NEW***Developing and Integrating Patient and Advisory Councils

    Libby Hoy, Founder, Patient and Family Center Care Partners (www.pfccpartners.com)

Covers how patients and families can work together with healthcare organizations to improve care for children and youth with special health care needs. This webinar is for both families and health care organizations—whether you are a family member of a hospital who wants to get more involved and provide input into patient care or a healthcare organization who would like to engage families. Learn how to start, sustain and provide training to Advisory Councils or find out if your health care organization already has one.

HANDOUTS:

To view the slides for the presentation, click here.

Example 1

Example 2

To view a video of the presentation, click here

Please visit the Patient and Family Center Care Partners at: www.pfccpartners.com to get information on the JUNE 24th upcoming conference and other resources. 

 

  • THE IMPORTANCE AND BENEFIT OF PARTICIPATING IN AUTISM RESEARCH: Perspectives of a Leading Scientist and Parents of Children with Autism

    Lisa Croen, PhD,Director Autism Research Program and Senior Research Scientist, Division of Research, Kaiser Permanente

Vanessa Wallace, Mother of 4 children with an autism spectrum disorder; Member Autism Research Program Community Advisory Board

This presentation was in honor of Autism Awareness Month and featured Dr. Lisa Croen, Senior Research Scientist and Director of the Autism Research Program at Kaiser Permanente Division of Research and parents of children with autism spectrum disorders (ASD).  It presents the state of autism research, two high profile, national studies, SEED and EARLI, and the importance of families participating in autism research.  Topics covered include: how researchers are seeking to discover the genetic and environmental risk factors for ASD and how families can contribute to science by participating in one of these studies.

HANDOUTS:

Overview of Autism Research Program
Flyers for Autism Research Program (in English and Spanish)

Autism Recurrence Fact Sheet

Thimerosal Fact Sheet

To view the slides for the presentation, click here.

To videw a video of the presentation, click here

Please visit the Autism Research Program website at: www.autismresearch.kaiser.org to view videos and and new materials including the 2nd Edition of the Autism Parent Handbook. 

  • HEALTH CARE REFORM:What it means for children and youth with special health care needs (February 2nd, 2011)

Janis Guerney, Family Voices National

How health care reform benefits children/youth with special health care needs, federal actions to implement the reform law, and what can be expected in the future.

REMEMBER: You Have Protections if Your Child is Denied Coverage
Remember, the health care law means that no child should be denied insurance for health reasons. If your child is denied coverage for any reason, call the state health insurance hotline at 1-888-466-2219 or visit the website.
 

To view the slides for the presentation, click here.

To view a video of the presentation, click here

HANDOUTS:

 

Would you like a copy of any of the above tools? Fill out & submit the order form.

To view the slides for the presentation, click here.

To view a video of the presentation, click here

 

  • AUTISM AND HEALTH INSURANCE: Making your benefits work for your child (December 1, 2010)

Karen Fessel, Dr PH, Executive Director and Founder, The Autism Health Insurance Project

Feda Almaliti, Autism Health Advocates

HANDOUTS:

Slides

Department of Managed Health Care Complaint Form

Making Your Benefits Work Information Sheet

To view a video of the presentation, click here

 

  • NAVIGATING CALIFORNIA CHILDREN SERVICES: The Financial Process & Health Insurance Plans with SUE JOHNSON and TERRY ENNS (Alameda County California Children Services) (November 3, 2010)

    This webinar helps you understand the detailed financial relationships between the programs covered by California Children Services and insurance plans. 

To download a copy of the PowerPoint presentation, click here

To view a video of the presentation, click here

 

  • UNDERSTANDING SERVICE DELIVERY MODELS FOR PHYSICAL & OCCUPATIONAL THERAPY: An Overview of PT and OT Service Models Used by California Children Services and School Districts with Diane Storman, Patti Palomar, Nancy Lavine and Melissa Haider. (October 2010)

    This webinar covered the continuum of service delivery models used to provide physical and occupational therapy to students, the focus of each model and how teachers and peers may participate in these services.

To download a copy of the PowerPoint presentation, click here

To view a video of the presentation, click here

 

  • HEALTH CARE CONNECTIONS: A Resource for Understanding and Navigating Health Care for Children and Youth with Special Health Care Needs" with Juno Duenas and Mara McGrath (September 2010)

    A training tool to understand core values for providing health care to CSHCN, various health care services for CSHCN, understanding a health care plan, working with providers and advocating in health care systems, and resources and information regarding health care for CSHCN.

Download Video

Download PowerPoint

 

Other Downloadable Materials:

Health Care Connections Manual (English, Spanish & Chinese)

"Know Your Health Care Plan" Handout

Addendum/Updates (March 2010)

Update to Manual: P51-55

Update to Manual: P56-62

Denti-cal info

 

  • THE MEDICAID WAIVER PROGRAM: A PRIMER
    with Randy Laya and Suzanne Butler, Regional Center of Orange County 

    Why would Regional Center staff ask you or a family you are assisting to enroll in the Medicaid Waiver program?  Learn the ins and outs of this important program for individuals receiving regional center services.

    This webinar covers: Eligibility criteria; Purpose of the Medicaid Waiver Program; and Institutional Deeming for Medi-Cal

    To see a copy of the PowerPoint presentation, click here

    To see a video of the presentation, click here (wmv)

     

  • WHAT WILL HEALTH REFORM MEAN FOR CALIFORNIA'S CHILDREN AND YOUTH WITH SPECIAL HEALTH CARE NEEDS? with Edwin Park, Center for Budget and Policy Priorities

    This presentation examines key coverage provisions included in the recently federal health reform law that would likely benefit children and youth with special health care needs in California.

    To see a copy of the PowerPoint presentation, click here

    To see a video of the presentation, click here (wmv)

    Edwin's recommended resources for up-to-date information on HCR:

Healthcare.gov 

Center for Budget and Policy Priorities

Kaiser Family Foundation

Health Access

 

Are you overwhelmed or confused by information about H1N1? Would you like understand how the spread of H1N1 may impact your family....your workplace....your community? Would you like to know what you can do about it? 

To see a copy of Elisabeth's PowerPoint presentation click here

To see a video of the presentation click here (wmv)

 

  • ADDRESSING THE MULTIPLE ISSUES IN COLLECTING RACE, ETHNICITY AND LANGUAGE DATA: Rationale, and Promising Practices with Vivian Jackson, National Center for Cultural Competence (December 2, 2009)

To see a copy of Vivian's PowerPoint presentation click here

To see a video of the presentation click here (wmv)

  • IMPACTING LEGISLATORS: Discuss New Research with Tony Anderson, Executive Director, The ARC of California (November 4, 2009)

To see a copy of Tony's PowerPoint presentation

To see a video of the presentation (wmv)

 

  • NUTRITION: The Big Picture (Eating, Pooping and Growing) with Hope Willis (MA, RD, CSP, UCEDD, Director, Dietetic Intership (October 7th, 2009) 

To see a copy of Hope's PowerPoint presentation

To see a video of the presentation (wmv)

 

  • Epilepsy 101 and Epilepsy and Seizure Disorders Resource Guide with William Stack, Associate Director of the Epilepsy Foundation of Northern California. (August 5, 2009)

To see a copy of Bill’s PowerPoint presentation

To see a video of the presentation (wmv - 35Mb)

 

  • Medicaid Waivers Training with Kathryn Smith, RN, Assistant Professor of Clinical Pediatrics in the Keck School of Medicine at the University of Southern California and the Associate Director for Administration at USC University Center for Excellence in Developmental Disabilities at Childrens Hospital Los Angeles.(July 1st, 2009)

To see Kathryn Smith’s Powerpoint presentation

To see a video of the second half of this presentation (wmv - 28Mb)