Project Leadership Training Manual

Project Leadership is a parent and family advocacy training program with an overall goal is to increase the number of family members of children with special health care needs who are prepared and supported to become advocates for health care policy and service improvements. The Project Leadership curriculum introduces parents and caregivers to the nuts and bolts of advocacy in a seven-session training series. The program is funded through a grant from the Lucile Packard Foundation for Children’s Health.

Project Leadership Training Manual

Project Leadership curriculum is undergoing revisions and updates. Please check back for updates or contact for information.

Summary Table of Contents
Detailed Table of Contents


Project Leadership: Association Of Maternal Child Health Program’s Innovation Station

AMCHP‘s Innovation Station is a searchable database of emerging and promising best practices in maternal and child health. To view the Project Leadership section, click here.

Project Leadership: Effecting Change, One Parent at a Time

Families of children and youth with special health care needs have had significant real-world experiences that could help make health care policies and administration more family-centered and culturally competent. However, many lack the training and experience to make their voices heard. FVCA’s Project Leadership program was designed to increase the capacity of families to partner in the development and oversight of services, systems, and programs upon which they and their children depend. Project Leadership features a comprehensive training curriculum, paired with mentoring and support, that prepares families to build partnerships with professionals and engage in public policy advocacy on behalf of children and youth with special health care needs. An independent evaluation found that program graduates from diverse backgrounds showed significant improvement in leadership skills and more confidence in their ability to advocate. In the project’s first two years, 79 parents completed the training and began actively participating on a variety of committees and planning bodies. In addition, they gave testimony at state and local hearings and were covered by the media.

Read the report: Project Leadership: Effecting Change, One Parent at at Time

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