Reminder: Register For Health Summit, Medical Cannabis, & New CYSHCN Data

This newsletter was sent January 31, 2017. If you’d like to receive our next bi-weekly digest full of a curated collection of resources, workshops, policy highlights, and action items that affect children and youth with special health care needs, please sign up here.

Family Voices of California Health Summit & Legislative Day To Be Held Feb. 27-28

Registrations for our 15th annual Health Summit & Legislative Day are quickly filling up! This conference brings together families, providers, state agencies, and others to identify and address the health challenges that affect children and youth with special health care needs. We are honored to have Senators Richard Pan and Holly Mitchell as this year’s keynote speakers. Panel topics will cover the future of California Children’s Services/The Whole-Child Model, mental health, and Medi-Cal. To view the agenda, click here, and to register, click here (free for families, $50 suggested donations for professionals).

New to the summit this year is our youth tracka separate session organized and led by youth and young adults with disabilities that will focus on health care transition. Co-sponsored by Yo! Disabled And Proud, we hope this session will serve as a safe space for 13-24 year-olds to discuss health care issues with peers while also learning from adult role models who have previously transitioned from pediatric to adult care themselves. To register for the youth track, click here (select the youth track drop-down option).


Report: The Health Effects Of Cannabis And Cannabinoids: The Current State Of Evidence And Recommendations For Research

The National Academies Press has issued a report compiling research from a number of individuals and groups on the health effects of medical cannabis. It provides a history of cannabis, its policy landscape and public opinion, and its various therapeutic uses for both physical and mental ailments. The publication also highlights research recommendations in this “pivotal time in cannabis policy and research,” which include a call for more pediatric-focused research. To read the report, click here.

New City, County-Wide Data On Children With Special Health Care Needs In California has released new wide-ranging data on children with special health care needs in collaboration with the Child And Adolescent Health Measurement Initiative. By providing local estimates of demographics, insurance coverage, impact on families and quality of care, the data offers a deeper understanding of the disparities and needs within the community. To access the data, click here.

The Year Ahead: Medicaid Works! A Fact Sheet From The National Health Law Program

This fact sheet details how Medicaid continues to help tens of millions of Americans annually. With the new administration suggesting they will pursue changing the program through block grants or capping or cutting federal funding, attorneys from The National Health Law Program  created this fact sheet to illustrate how Medicaid works as is, and that we’re all better because of it. To read the fact sheet, click here

RelatedMedicaid Fulfills Crucial Role For Children With Special Health Care Needs

Related: Everything You Need To Know About Block Grants—The Heart Of GOP’s Medicaid Plans

RelatedFact Sheet: Per Capita Caps vs. Block Grants In Medicaid


Disability Rights California Seeks Feedback On Regional Center Child Therapy Services

Disability Rights California is collecting information from families on the ability of regional center clients to obtain therapy services through Medi-Cal or private insurance. To complete a short survey about your child, click here (includes information on how to submit your answers).

Stanford Researchers Recruiting Boys With Disabilities For Eye Gaze, Social Skills Study

The Center For Interdisciplinary Brain Sciences Research at Stanford is looking for boys with disabilities ages 8-18 to participate in a study investigating behavioral training methods to improve eye contact and social skills. Participants must be local and be able to tolerate a 30 minute MRI scan. An honorarium of $100 will be provided. For more information, click here.

Upcoming CalABLE Events Scheduled Throughout California

During the month of February and early March, multiple California Achieving A Better Life Experience (CalABLE) informational sessions are scheduled for Sacramento, San Rafael, Oxnard, Simi Valley, Chatsworth, Pomona, Torrence, Culver City, and Stockton. For the full list of dates and times, click here.


February 1: Treatment Across The Lifespan For Persons With A Fetal Alcohol Spectrum Disorders

Sponsor: The Arc’s FASD Prevention Project

More information and registration here.

February 2: The ABCs Of Applied Behavioral Analysis

Sponsor: American Autism Association

More information and registration here.

February 7: Tips To Interact Effectively With Law Enforcement

Sponsor: Sibling Leadership Network

More information and registration here

February 8: One Size Does Not Fit All: Individualized Therapy

Sponsor: National Hemophilia Foundation

More information and registration here.

February 9: Integrated Health: The Basics

Sponsor: Catholic Charities USA

More information and registration here.

February 14: Prefrontal Cortical Circuits In Schizophrenia: Molecular Vulnerabilities, And Clues For Treatments

Sponsor: Brain & Behavior Research Foundation

More information and registration here.

February 15: Self-Injurious Behavior

Sponsor: Autism Research Institute

More information and registration here

February 16: Relationship-Centered Care: A Healthcare Providers’ Guide To Patient Engagement, Shared Decision Making, And Improved Outcomes

Sponsor: Health Management Associates

More information and registration here.

February 16: Managing Your ABLE Account To Help Reach Your Goals

Sponsor: National Down Syndrome Society

More information and registration here.

February 23: Housing For People With Intellectual And Developmental Disabilities

Sponsor: University Centers For Excellence In Developmental Disabilities Education

More information and registration here.


Behavioral Health News Winter Edition: Transforming Systems Of Care For Children

Parents With Autistic Kids Could Lose Care In ACA Repeal

High Prices For Orphan Drugs Strain Families And Insurers

Steinberg Institute Gets $1.5 Million From Sutter For Mental Health

Pioneering Spinal Surgery In The Womb Boost Babies’ Odds

Op-Ed: The Non-Politics Of Disability

Tesco Introduces New Signs On Disabled Toilets To Recognise ‘Invisible Disability’

Food Allergies Impose An Additional Burden On California Families Struggling To Make Ends Meet

New Technology May Give Speechless Voice Of Their Own

Dads Turn Heartbreak Into Unrelenting Focus On A Cure

California’s Undocumented Kids—Why They Could Be First To Lose Medical Care Under Trump

Was The Epi-Pen Hack Ethical?

Grandmother Of Disability-Rights Movement, Zona Roberts, ‘We Will Prevail’

Is Betsy DeVos Against Enforcing Disability Rights Laws—Or Does She Not Understand Them?

IDEA Concerns Linger Over Education Nominee

Like Us!
Follow Us!
Email Us!