SSI Apps Now Online, Important CHIP Resources, & A High School Transition Report

This newsletter was sent April 25, 2017. If you’d like to receive our next bi-weekly digest full of a curated collection of resources, workshops, policy highlights, and action items that affect children and youth with special health care needs, please sign up here.


Supplemental Security Income Applications Now Available Online For Individuals 18 To 65

The Social Security Administration recently launched an online Supplemental Security Income (SSI) application open to individuals 18-65 who meet certain requirements. Those with limited English proficiency can also use the new online service to request an appointment for an in-person claim or teleclaim in the language of their choice. In addition, SSI and disability applications can now be filed online at the same time. For more information, click here.


Report: Are High School Students With Disabilities Prepared For Life After School?

A new report funded by the U.S. Department Of Education explores the transition experiences of students with disabilities during high school graduation time. Volume 1 compares their experiences to those of their typically developing peers, finding that youth with Individualized Education Plans (IEPs) are more likely to be socioeconomically disadvantaged and encounter health problems. Volume 2 compares students across disability categories, finding that youth with autism, intellectual disabilities, and multiple disabilities are most likely to receive academic modifications, but least likely to receive other forms of academic support. Click here to read Volume 1, and here to read Volume 2 for full report findings.

State Perspectives On Children’s Coverage In The Changing Health Policy Landscape

A new issue brief from the National Academy For State Health Policy (NASHP) outlines key principles concerning children’s coverage that policymakers should consider as health decisions are deliberated at the national level. As it stands, the future of the Children’s Health Insurance Program (CHIP) remains uncertain past September (more information here). To ensure  kids’ coverage remains a priority, NASHP convened a group of CHIP and Medicaid officials to discuss key issues. To read the brief highlighting main themes, click here.


Report: The Primary Care Pediatrician And The Care Of Children With Cleft Lip/Palate

The American Academy Of Pediatrics has released a new report that provides background on cleft lip and palate (CL/P) and multidisciplinary team care, information about typical timing and order of cleft-related care, and recommendations for cleft/craniofacial teams and primary care pediatricians in the care of children with CL/P. The report recognizes the important role of the primary care pediatrician in making a timely diagnosis, providing ongoing health care maintenance, and functioning as an advocate for the patient and a liaison between the family and the craniofacial/cleft team. To read the report, click here.

The Next Seven Achievements In Pediatric Research: Predictions From The AAP

The American Academy Of Pediatrics recently published an article that reflects on past pediatric research progress and predicts what’s next in the field. Up-and-coming topics include new immunizations, cancer immunotherapy, genomic discoveries, quality improvements in science, identification of early antecedents of adult health, the impact of social-environmental influences on biology and health, and implementation and dissemination research to reduce global policy. To read the press release, click here (subscription required for full article).


Recording: Family Leaders Engaging With Title V Programs & The Block Grant Process

Hosted by: Family Voices. To watch the webinar, click here.

April 26: Aligning Clinical Practice With Diabetes Prevention: Screen, Test, And Refer

Hosted by: California Medical Association

More information and registration here (you must create an account to register). 

April 27: The ABLE Act: A Tool For Financial Stability And Employment Outcomes

Hosted by: The LEAD Center

More information and registration here.

April 27: Inside UCSF: Latest Advances In Autism Research, And How You Can Help

Hosted by: SF Autism Society

More information and registration here.

May 3: Best Practices For Promoting Developmental Screening

Hosted by: Family Health Outcomes Project

More information and registration here.

May 3: Mental And Behavioral Health Of Rural Children: Insights From The CDC MMWR Rural Health Series

Hosted by: Rural Health Information Hub

More information and registration here

May 4: Resources To Advocate For CHIP Renewal In California

Hosted by: The California Children’s Health Coverage Coalition

More information and registration here.

May 8: Supporting Sensory Needs In Children And Teens With Autism

Hosted by: Autism Research Institute

More information and registration here.

May 11: Community Paramedicine: A New Approach To Serving Complex Populations

Hosted by: The Center For Health Care Strategies

More information and registration here

May 16: Working With Adult Allies

Hosted by: National Center For Family/Professional Partnerships, Autistic Self-Advocacy Network, Kids As Self Advocates, & Youth MOVE

More information and registration here (webinar for youth only).

May 17: Supported Decision Making: Planning For Medical Decision Making

Hosted by: The Arc Center For Future Planning

More information and registration here


Why In-Home Care for California’s Needy Could Strain County Budgets

Seeing Outside The Disability Box

Guaranteeing Health Care For Children In The United States

Diabetes Rates Rising Fastest Among Minority Youth

What To Expect During A Newborn Screening Panel

F.D.A. Strengthens Warnings For Painkillers In Children

Health Care Failed My Son – And I’m A Doctor

Lead Found At Two San Marcos Schools, As District Tests For The Toxin

Disabled Placards For Thousands Of Dead Californians Part Of Program Abuse

Researchers Seek Juvenile Justice Alternatives For Children Under 12

WATCH: A Race to The US to Save A Newborn’s Eyesight

F.D.A. Warns Of Products Claiming To Cure Autism

Stalking The ‘Unknown Enemy:’ Doctors Scope Out Rare Diseases

Tackling Obstacles To Finding Care For Young Adults With Hydrocephalus

Pediatricians See More Trump-Related Trauma In Kids

Black U.S. Babies Still More Likely To Die Than White Infants

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