Alison & Family Head To DC, CCS/WCM Survey, & A Mental Health Parity Webinar

This newsletter was sent July 18, 2017. If you’d like to receive our next bi-weekly digest full of a curated collection of resources, workshops, policy highlights, and action items that affect children and youth with special health care needs, please sign up here.

Reminder: use our resources to tell legislators why Medi-Cal is critical for children and youth with special health care needs and urge them to preserve Medicaid. Also see: updated crosswalk of bill provisionssummary of findings, and implementation timeline (all via NASHP).

Project Leadership graduate Alison Beier and family were invited to attend Speak Now for Kids’ Family Advocacy Day on behalf of UCLA Mattel Children’s Hospital July 12-13. Each year, families from children’s hospitals across the country travel to Washington, D.C. to meet with their legislators and discuss pressing health care issues. Seven-year-old Evan Beier was born with multiple congenital anomalies, and he and his mom stressed the importance of Medicaid funding, mental health access, In-Home Supportive Services, and more.

To read Alison’s full recap and learn how the Project Leadership program helped shape her focus, click here.

Parent Survey: Rollover Of Select Kids In California Children’s Services Into Medi-Cal Managed Care Plans: How Can We Help You?

If your child receives California Children’s Services (CCS) in one of these 21 counties, Family Voices Of California invites you to share your questions, concerns, and let us know  how we might assist you in the coming year.

No sooner than July 1, 2018, The Department of Health Care Services (DHCS) will begin transitioning kids currently enrolled in CCS in the above 21 counties into Medi-Cal managed care plans.

By implementing this new Whole Child Model, the DHCS hopes to integrate health care for children and youth with special health care needs. To take the survey, click here. For more information about the Whole Child Model click here, and for county-specific phase-in information click here.


CDC Releases 2016 Chartbook On Long-Term Health Trends

The Centers For Disease Control And Prevention (CDC) has released their 40th annual health trends report that presents an overview of national trends in health statistics. It also contains 141 trend tables organized around four major subject areas: health status and determinants, health care utilization, health care resources, and health care expenditures. To read the report, click here.

New Learning Module: Communicating The Importance Of Developmental Screening

The Association Of Maternal & Child Health Programs (AMCHP) has released a new learning module on the value of developmental screening. It includes four steps to promote early identification, speaker perspectives, and various resources. To view the module, click here.


Public Comment Period For Healthy People 2030 Framework Now Open

Healthy People provides 10-year, science-based national objectives for improving health that reflect input from a diverse group of individuals and organizations. The team is requesting comments on the proposed framework for Healthy People 2030, which refers to its vision, mission, foundational principles, plan of action, and overarching goals. For more information, click here.

Women With Epilepsy Conference To Take Place Saturday In Castro Valley

The Epilepsy Foundation Of Northern California will host its first-ever Bay Area conference this Saturday from 9 a.m – 2 p.m. The ‘Living With Epilepsy’ event is open to all women with epilepsy as well as caregivers, friends, and the public. Cost is $25 per adult, $10 per child (4-12). For more information, click here


Mental Health Parity: Assuring Equal Access To Treatment For Children And Youth In California 

Family Voices Of California will host a webinar on August 16 detailing the necessary strategies to overcome insurance company discrimination. Attendees will learn about federal and state mental health parity laws and how to appeal the denial of insurance coverage. To register and learn more, click here.

July 20: Supporting Title V And Medicaid Collaboration In Pediatric Medical Home Implementation

Hosted by: National Center For Medical Home ImplementationNational Academy For State Health Policy, and The Catalyst Center

More information and registration here.

July 20: The Many Faces Of Advocacy

Hosted by: Hemophilia Council Of California

More information and registration here

July 20: Allergies And Sublingual Immunotherapy (SILT)

Hosted by: Allergy & Asthma Network and American College Of Allergy Asthma, & Immunology

More information and registration here.

July 26: Medicaid Undone: Covering The Safety Net’s New Future

Hosted by: The Center For Health Journalism

More information and registration here.

July 29: Reducing Risk And Abuse Prevention

Hosted by: Parents Helping Parents

More information and registration here.

August 2: Effects Of Propranolol On Functional Connectivity In Autism

Hosted by: Autism Research Institute

More information and registration here.

August 9: Normal Pressure Hydrocephalus: Treatments And Current Research

Hosted by: Hydrocephalus Association

More information and registration here.

Archived Webinar: Measuring Family Experience Of Care Delivery Integration To Improve Care Delivery


Little Lobbyists: Stories Of Kids With Complex Medical Needs On Capitol Hill

Families Take Risky Road Trip To Save Their Health Care

Potential Impact Of Health Bill On Home And Community-Based Services Spending 

California Health Care Foundation’s July Newsletter On Medi-Cal/Senate Health Care Bill 

Autism Still Gets Dismissed By Some Doctors, Family Learns In Yearlong Challenge

Increasing The Number Of Doctors With Disabilities Would Improve Medical Care

Doctors With Disabilities: Why They’re Important

Proposed Medicaid Rules Offer Rural Residents Less Access To Specialty Care

Parents Of Ill Children Worry About Return Of ‘Lifetime Limits’ In GOP Health Bill

Medi-Cal Patients Sue State, Claiming Widespread Discrimination 

On Point Radio Audio Recording: Children With Disabilities And The Senate Health Plan

Effort To Shield Disabled From Medicaid Changes Would Leave Many Kids On The Outside

‘Carve-Out’ In Senate Republican Health Care Bill Fails To Protect Children

This Boy’s Care Cost Up To $15,000 A Month. Will The GOP’s Health Plan Cover It? 

Kids In Pro-Trump Rural Areas Have A Lot To Lose If GOP Rolls Back Medicaid

For Many, Medicaid Provides The Only Route To Mental Health Care

Why Americans With Disabilities Fear Medicaid Cuts


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